I got an up close look at an amazing woman, Lisa Sniderman, Aoede, with an interview about her upcoming book A Light in the Darkness: Transcending Chronic Illness Through the Power of Artand her chronic illness Dermatomyositis. She is full of fairy sparkle and creativity. Just listening to her made me feel so inspired. We talk a lot about what it means to be chronically ill and disabled as an artist. In many ways, it is a tremendous escape to use art as a therapy when dealing with chronic pain. We go over some real ways, tools, and apps that can help you explore new art forms.
Life can be full of kismet. I just started doing live recording on ZubiaLive about chronic illness and trying to live a life and the site wanted to connect with LinkdIn. I have not been active on LinkdIn since I was a photographer. So I did my best to create a decent profile for Invisible Not Broken Podcast. In less than an hour I had gotten a lovely email from a Pain Management Doctors PA. who also has Ehlers Danlos Syndrome. A fellow zebra who knows things from the other side of the stethoscope? I grabbed her for an interview the very next day!
I had some other things to post but this is far too important. If you want to skip right to the point on pain management lists and what to do or say to have a better emergency room experience go to minute 26 and keep listening. We meander a bit but you will get what you need. If you have the time listen all the way through. This woman has a way of breaking things down and doctor PTSD might be my new favorite phrase.
Krantom I wish I had a better source for this but getting information on Krantom for pain management is not easy. We are in no way endorsing any particular pain management I think we would all just like unbiased pain management information.
In this week's episode, I spoke with Lauren who has been diagnosed with fibromyalgia since the age of 12. We discussed the difficulty of High School with chronic illness, trouble with college when you have a medical leave and also some interesting ideas of what compliance with ADA means to some schools and at Target. We talked about the importance of the ACA and the ability, especially for chronically ill children to be able to stay on their parent's health plan. We also covered the social side of chronic illness and fibromyalgia as well as some frustrations on the treatment of individuals who have an invisible illness.