About the Podcast and Blog







Follow Us


Did You Know I Am Also A Children's Book Writer and Illustrator? Click To See More

Did You Know I Am Also A Children's Book Writer and Illustrator? Click To See More

Monica Michelle

Monica-Michelle-Headshot-invisible-illness-podcast-host.JPG
 

I have been so many things in my life. I have gotten very good at packing up who and what I use to be and starting over. Being chronically ill gives you odd and not always welcome super powers. Starting over is one of mine and soft skin and bones that reshape into Picasso sculptures. Thank you Ehlers Danlos.

This podcast came about when I needed a new purpose. I had to shut down the photography studio I built for 10 years . I also had people come up to me shaking with pent up rage as they pointed to me then to the disabled sign when I would park in the handicap zone.

I am creating this podcast with the very fond and optimistic hope that it will help.

Help build tribes and those me too moments.

Help others be kinder and more gentle with each other.

Help educate the public that there are some rather awful diseases and disorders that need attention and funding.

Help, on a very personal level, to get city planners to really consult with disabled wheelchair users. I promise you that many cities cross walks are disability X Games for me.

1. Thank you for being interested and listening to the podcast and reading the blog.

2. If you enjoy PLEASE share! To everyone. Friends, family, random humans who happen upon your path, and other spoonies who might have or think they have one of the many chronic illness conditions..

3. If you enjoy please leave glowing bordering embarrassing praise in I tunes.

4. If you do not like or are offended (I swear, a lot. It is almost a super power how many ways I can fit my favorite four letter word into a random conversation). Ignore me. Start your own thing. I promise it's not that I don't care about your opinions it is that I am too sick to take my energy away from making this project. So if you hate, dislike or are offended by me please go out in the world and make something you want to read or listen too.

All my best! Remember ,

Be Kind. Be Gentle. Be A Bad Ass.


 

Eva Lana Minkoff

My Invisible Illnesses

Fibromyalgia

Joint Hyper-mobility Syndrome

IBS

Suspected MCA and who knows what else???

I am so honored to be the new co-host of INB!

My episodes are quite different from Monica’s in that I interview practitioners who treat AND have chronic illnesses, plus I started another sub-series interviewing Spoonie Influencers! Hopefully you enjoy the juxtaposition between my style of interviewing and Monica’s! Feel free to reach out to me directly anytime: Eva@wellacopia.com

More about me:

Many of my friends and family members will tell you that I am one of the most candid, outspoken, intense (I prefer "passionate") people you will ever meet. I have fibro “plus” as I say, and while in the past I had to mention something from time to time in order to not alienate people, I hardly EVER talked about my pain. In fact, even in my close relationships I felt guilty every time I mentioned it because
1. When I was young people thought I was a hypochondriac
2. I felt it made me look weak
3. I didn’t want to be a burden, which I felt I inevitably must be.

Since I was a child, my life's mission has been to help others in various ways in regard to their health, so you can imagine how being someone who needs extensive help with health themselves is quite a downer…until 3 years ago.

Driven by my own needs and the needs of 1000's like me looking for the right support and care, after the ENDLESS trial and error and disappointment, I co-created Wellacopia.

Wellacopia helps those with chronic illnesses find their ideal health practitioners through match-making.

Those seeking care are matched with practitioners based on medical and personal compatibility factors, such as specialty experience, ideal services, relationship dynamic preferences and even personality traits. Wellacopia digs much deeper and past the surface of insurance and location considerations alone.

Our mission: better healthcare relationships for better healthcare outcomes.

Please visit Wellacopia.com to learn more.

We hear you and we are here for you.

 

Kyros Star

 Menlo Park photographer

My Invisible Illnesses

Dairy Allergy / Lactose Intolerance

Morton's Neuroma

Peripheral Neuropathy

A bear and a bird giving guided tours in the land of invisible disabilities.

Growing up, I had an uncle who had polio and spent his entire life in a wheelchair. Seeing what he went through made me a staunch ally for people with disabilities from a very early age. Then, shortly before I turned 30, I received my golden ticket into the realm of invisible disabilities when the bones in my feet decided they wanted to crush the nerves running through them.

My hope is that, through this podcast, I can help people to not feel as isolated when dealing with the daily ups and downs of living with an invisible disability.

You are not alone. We're there with you, every step, hobble, stumble, or spin of the wheels. 

Namaste!