I got a day pass from my EDS. After WEEKS in bed
and getting all my meds together I was able to go out for 5 hours!!! I know for anyone healthy this doesn't sound like much but for my fellow spoonies imagine 5 hours where you could actually "pass" for normal. I got to watch my little run around on tree swings at Rancho Siempre Verde and beaches. What would you do with a day of freedom spoonies and all welcome to respond?