Spoonie tip

My favorite chronic illness life hack is to take pictures of anytime your disorder flares and keep them in a google photo album. I cannot begin to tell you how much this helps doctors to take you seriously.

I have a folder called fun bone shapes

It has cut down vastly on the different pain language medical professionals and I speak. “If you dislocated you would have been in the hospital for the pain.” “It doesn’t look like much now you must have just sublimated it.” “You know sprains can hurt a lot.” Do any of these look familiar? Pictures that show what you are dealing with in their most extreme keep these conversations to a minimum and remember if a doctor or nurse ask you what your pain number is always ask them if it is your pain scale of theirs.