Holidays, Family, Travel, and Parties Spoonie Survival Guide {Chronic Illness Podcast}

 Does this look familiar? Yup an oldie and goodie from last year. Kyros & I are not doing well and this one is just too good not to share again. Please share with family, friends, and support groups. I hope you enjoy and that Kyros and/or I am doing well enough to record again soon.

Holidays with chronic illness

This is super general and done just from my perspective. Take what works for you drop what doesn't and tweet your own tips to @invisiblenotbrk and help another spoonie out! Remember we are not medical professionals, if we were with our vocabulary we would be fired.

Now that I think I have legally covered our asses I'm going to start with what to do if you are spending the holidays alone.

Self-care is your buzzword of the day. Make sure you have your meds Make a playlist that makes you smile, no judging Jefferson Airplane We Built this City is on mine. ok judge, if it makes you feel better.

Jigsaw Puzzle (Is wear it calms my ADD brain) Click if you think for a minute I was going to leave Dr. Who out of this. Favorite Dr. Who quote? "You know that in 900 years in time and space I've never met anyone who wasn't important before." Seriously if you have never watched it almost counts as an antidepressant for me. Streaming on Amazon Prime.

 Walks or just sunlight. If stuck in bed pick the part of you that can move and do. 

Make something art, music, the worst poetry in existence. Just make something. This Neil Gaiman speech is well worth your 20 minutes.

If you are a Holiday sort of person decorate your nightstands or make a warm cinnamon drink.

Take a class






If you are really in serious emotional trouble please call the helpline

Call 1-800-273-8255

Available 24 hours every day


If you are not alone (like NEVER alone) Planning ahead. 

Pack meds.

Call ahead and make sure there is a quiet space just for you

Bring food you can eat if anyone gives you attitude you can always explain in great detail what will happen if you eat their food trust me you will never have to explain again.

Lower your standards. Say it with me 'I am not Martha Stewart. I am not Joanna Gaines.' These are lovely talented women who have help, so much help

The phrase 'No.' This magic word has so much power that usually toddlers wield it. It is your turn. Will people be disappointed? Only the asses.  

I am going to give you the magic phrase that separates the merely ignorant from the jerks 'I have blank I can spell it if you would like to look it up. Currently, I am only accepting advice from my health care professionals but thank you for your concern.' If they persist hide in that quiet room you asked for.

Remember You know your body and your mind take care of them in a way that suits you best,  I'm closing with the advice of one of our listeners. 

Remembering it’s okay to not feel okay. You can’t control when flare ups happen, and it’s not your fault!! It’s okay to need to take naps or not eat dinner because you can’t. It’s okay to wake up late, it’s okay to not have energy!!

C{Andy} cane  🍭

So that's it. If you 'have more tips I will leave the comets open or tweet @invisiblenotbrk. Share this with family and friends Give the gift of kind comments on Itunes and until next week

Be kind. Be Gentle. Be a fucking bad ass.