Holly Fowler's blog: www.colitiscopenutrition.com
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Name: Holly Fowler
Disorder: Ulcerative Colitis
What would make living and moving in the world easier for you?: I think it would be more awareness of invisible illnesses and Ulcerative Colitis, so that I don't feel like I have 3 heads when I try to explain it to people. Also, more access to bathrooms (!!!) so I don't feel ashamed when I make a scene in CVS begging to use their locked bathroom before an accident happens. (True story!)
Does the fact that your disease is invisible change how healthcare professionals treat you?: I definitely have to advocate for myself when I go to doctors other than my GI. I never assume they understand the correlation between my medications, my allergies, and my current symptoms. I once went to the infirmary on my college campus for strep throat. Without looking at my chart, they just handed me amoxicillin and, because I trusted them, I took it. Within a day, I was in a full flare-up and was sick for a month before being hospitalized.