All tagged POTS

Ehlers Danlos, Fibromyalgia, POTS, & MCA Collect Them All {Invisible Illness Podcast}

Click Title To Listen To Invisible Illness Podcast

 

 

 

 

This is my interview. It is candid and though I am writing this before recording I am guessing littered with swear words. If I have to live like this, be inspiring, be funny, and do all of the other things I need to I get to lean on my favorite four letter word. If this is offensive to you please know that being in constant pain every day is offensive to me.

Ehlers Danlos

POTS

Fibromyalgia

Thank you so much for listening. Please share with a friend and don't forget to leave a kind if not glowing review on iTunes.

Until next time

Be Kind. Be Gentle. Be a Bad Ass.

Invisible Illness and the Adventure of Getting a Diagnosis {Diagnosis: precious, my precious}

Click Title To Listen ToThe Podcast

 

When you have something rare and invisible (with added issues of such things as weight, socioeconomic status, female, or age) many times a doctor has never heard of your illness or had only heard about it in passing in medical school. There can be issues of not knowing how to properly administer tests (fibromyalgia test is pressure points and many doctors still think that Ehlers Danlos can only be diagnosed if someone has super stretchy skin). Kyros had to perform most of his own diagnostic tests at home for his food allergies.

I hope you enjoy this episode. It was an emotional one to record as my diagnosis took over 20 costly years to obtain and I know Kyros went through many pitfalls to get to his.