Click title listen to our invisible illness podcast about being sick in America (oh yes this will get political), parenting with an invisible illness, and some slam poetry.
Listen to the podcast here
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(...Hang on, maybe Ehlers-Danlos?? Amazing the things you can learn doing podcast interviews...) After watching Jen through the interview I was impressed at all of the crazy shapes she was making while stretching. She also has the swan deformity and so many other symptoms of the disorder I have.
Did I get lucky! I got to make a new friend. I hope you enjoy listening to Jen. She is an amazing poet and at the end of the interview, you can hear two very powerful poems. She is hilarious and strong. She has been dealing with being sick and frail even though she has made massive changes (losing 100lbs) and has just started in on her 40's. We talk about parenting with a chronic illness, the American healthcare system (buckle up its' about to get political), the importance of art when you can't get out of bed, and how important friendships are especially when you are dealing with chronic invisible illness.