Writing Through Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, & Stroke: The Indomitable Georgiana

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What is your disorder? *

SLE Lupus, Fibromyalgia, Hepatitis B, Neurological Functional Disorder, Stroke

At what age did your disorder become a daily issue? *

12

Who were you before your illness became debilitating? *

Youth Worker

What would you do if you were not dealing with your invisible illness? *

An active member of the community Urban Vision, while being a Youth Worker

What would you like people to know about your daily life? *

My health is not reliable (i have good days but bad, I get sick easily and fatigue levels can come and go without warning)

What would make living and moving in the world easier for you? *

Being able to work from home (Which I started this year) Also not having illnesses

Do you have any life hacks? *

Stay Positive, even when it's hard too

What kind of support do you get from family or friends? *

Emotional, Love and travel

Have you ever had someone not believe you have an invisible illness because of your appearance and if so are there any examples that stand out? *

I've had strangers who want me to move so they can sit, (when I don't take my walking stick, which I only use when I'm tired and Lupus is flaring up).

How has your invisible illness affected your relationships? *

I can't commit to doing everything and anything

Is there anything you are afraid to tell people in your life? *

Nope, I try to be honest about my life as it's been filled up with challenges

Does the fact that your disease is invisible change how healthcare professionals treat you? *

Yes, my careers hours has been dramatically decreased, and travel costs are no longer part of my career taking me to appointments and regular blood tests when I am sore and tired we have to walk.

What is your best coping mechanism? *

laughter and surrounding myself with loved ones

What are you the most concerned about and the hopeful for in the future? *

That I get seriously sick

What is your favorite swear word?

Fucking Hell

What is the hardest and/or best lesson your condition has taught you?

It's ok to put yourself first, so you can be there for others

What is the best purchase under $100 that helped your life

meds