Running A Business While Having Chronic Illness Some Tips Some Pitfalls and Some Hope {A Chronic Illness Podcast}

Click Title To Listen To Two women in business while also dealing with chronic illness have a VERY honest discussion about pitfalls, planning, and vision in business while being a spoonie.

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Get This Woman A Cape: Dealing With NF: Chronic Illness and Parenting Children with Chronic Illness: And Some Kick Ass Snowboarding and Other Self Care Tips {Chronic Illness Podcast}

Click Title To Listen to Chronic Illness Podcast About Neurofibromatosis

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Holidays & Parties Spoonie Survival Guide {Chronic Illness Podcast}

Click Title To Read Holidays with Chronic Illness

This is super general and done just from my perspective. Take what works for you drop what doesn't and tweet your own tips to @invisiblenotbrk and help another spoonie out!

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A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast

Click title to listen to our chronic illness podcast all about chronic pain management which is now privately being called the opioid crisis in four letter words.

 

This administration moralizes those who are weak and helpless, they are not going to the pharmacies forcing them to stop or change.

Privilege and pain management 

Snake oil

True cost of chronic pain

Opioid epidemic in hands of pain doctors this is not moral

Hope on the scaffold pain management and desperation

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Fibromyalgia, A Spoonie in Business, Selfcare, Best Gifts to Give Someone Who has Chronic Illness, & The Joys of Hormones and Chronic Illness

Click the title to listen to Invisible Not Broken's interview with Eva Lana Founder of Wellacopia who runs her business while dealing with her chronic illness, fibromyalgia

Join Invisible Not Broken, a chronic illness podcast, this week when I interview Wellacopia founder about her journey so far into the world of chronic illness, spoonie life, and being a new business owner with fibromyalgia. Also a great idea for a gift for the spoonie in your life....Tempurpedic mattress!

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The Ins and Outs of Vasculitis, Rheumatoid Arthritis, Buergers Disease, and Wegners Granulomatosis This Week on our Chronic Illness Podcast

Click on title to listen to chronic illness podcast

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Real Romance: Carbs and Insulin Diabetes and Colitis: Parenting With Chronic Illness: Invisible Illness Serial Podcast

Click Title To Listen To Our Chronic Illness Podcast (and don't forget to order Vanessa's adorable children's book!)

 

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EDS,MCA, POTS, Collect Them All: German Socialized Medicine, Medical Marijuana, UBER WE HAVE AN IDEA FOR YOU: Chronic Illness Serial Podcast

Click title to read chronic illness blog and our Q&A about Ehlers Danlos, socialized medicine, POTS, MCA, and medical marijuana

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Who Knew You Could Live Without Kidneys? {Chronic Illness Podcast}
Diabetes The Ultimate in Self Regulation : How To Really Screw Up A College Student's First Year: Chronic Illness is the Baby that Never Grows Up

Click Title For Our Diabetes Episode Of Invisible Illness Podcast

Diabetes Type 1

Neuropathy

Diabetes Association

Insulin Pump

Insulin

Artificial Pancreas

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Sex and Disability: Everything You Want To Know About Dating and Chronic Illness But Were Afraid To Ask

Click Title to Listen To Our Invisible Disabilities Podcast

 

Sex and Disability: Everything You Want To Know About Dating and Chronic Illness You Wanted To Know But Were Afraid To Ask. Invisible Not Broken an invisible illness podcast.

Today a bear and a vanilla suburban housewife talk sex and relationships with chronic illness.

I have Ehlers Danlos, MCA, POTS, and Fibromyalgia here my interview here

Kyros had food allergies and Morton's Neuroma listen here

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Ehlers Danlos, Fibromyalgia, POTS, & MCA Collect Them All {Invisible Illness Podcast}

Click Title To Listen To Invisible Illness Podcast

 

 

 

 

This is my interview. It is candid and though I am writing this before recording I am guessing littered with swear words. If I have to live like this, be inspiring, be funny, and do all of the other things I need to I get to lean on my favorite four letter word. If this is offensive to you please know that being in constant pain every day is offensive to me.

Ehlers Danlos

POTS

Fibromyalgia

Thank you so much for listening. Please share with a friend and don't forget to leave a kind if not glowing review on iTunes.

Until next time

Be Kind. Be Gentle. Be a Bad Ass.

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Invisible Illness and the Adventure of Getting a Diagnosis {Diagnosis: precious, my precious}

Click Title To Listen ToThe Podcast

 

When you have something rare and invisible (with added issues of such things as weight, socioeconomic status, female, or age) many times a doctor has never heard of your illness or had only heard about it in passing in medical school. There can be issues of not knowing how to properly administer tests (fibromyalgia test is pressure points and many doctors still think that Ehlers Danlos can only be diagnosed if someone has super stretchy skin). Kyros had to perform most of his own diagnostic tests at home for his food allergies.

I hope you enjoy this episode. It was an emotional one to record as my diagnosis took over 20 costly years to obtain and I know Kyros went through many pitfalls to get to his.

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A Bear, A Zombie Leg, Food Allergy, Morton's Neuroma, and Living the Spoonie Life

Click Title To Hear Interview on our chronic illness podcast

Meet my new co-host Kyros. He was one of the first friends I made when we moved. He and his husbands are the most loving and kind men you could ever hope to call friends.
Kyros has
A Cadaver part in his leg (blame it on the zombie's leg)
Morton's neuroma
Arthritis
Dairy Allergy
Spoon Theory
We also cover poor city planning otherwise known as wheelchair XGames and the many meanings of "I'm fine."

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