This week we’re talking about the Thoracic Outlet Syndrome with Jen Hein and I have been waiting a long time for this episode because I really want to talk to another person who has a chronic illness and had to close of business that they built. Some of you know that I also had to shut down my Menlo Park photography studio when my Ehlers Danlos became too severe to continue. We talked about everything from pain management, medical marijuana in California, the opioid crisis has always been a big one here, and getting on drug seeking lists when accessing pain medication, and the kind of behavior you have to show to be a "good" patient. Listen to the very end because we talk about what it’s like for spoonies to be in a relationship together, we talked about sex and disability (check out Kyros and my panel discussion about chronic illness and sex and relationships here), and we talk about some really good ideas for romantic low-stress spoony dates.
Recommendations and Links
A Better Pain Scale Hyperbole and A Half
Golden Tiger Balm
Acupuncture and Thoracic Outlet Syndrome
What is your disorder? *
Thoracic outlet syndrome. I also have scoliosis, myofascial pain syndrome, and chronic pain (Love that one, such a blanket term)
If you would like to contact Jen you can find her on Instagram at rebel__lioness